The Myasthenia Gravis Association (MGA) is a nonprofit organization dedicated to serving the needs of people with MG, a neuromuscular disease. We assist patients and their families in coping with this disease through education, diagnosis, treatment, and support. Read more…
SOSIN EDUCATION SYMPOSIUM – October 13, 2019
The Sosin Education Symposium was held on Sunday, October 13, 2019, at the Inn of St. Johns in Plymouth, MI. Everyone enjoyed a great meal, followed by MGA’s Annual Meeting, the awards presentation and guest speaker, Wayne T. Cornblath, MD, Professor, Department of Ophthalmology & Visual Sciences and Neurology, University of Michigan.
There were two Sosin Award winners this year. Kathryn Chrzanowski is the mother of a young adult woman who struggles with myasthenia gravis. Kathryn has taken the lead in gathering information about myasthenia gravis and notifying MGA when new information is available. Kathryn participates in MGA events including the Golf Classic, always bringing a foursome. She maintains her membership in MGA, is generous in donating to the Association, and encourages others to donate as well through their company’s programs. Kay Connelly has been very active in the Ann Arbor Support Group, assisting Dick Giba in that responsibility. In addition, Kay, along with her husband, Dr. William Chamness, gave an exceptional presentation on “Diet is a Four Letter Word” to the MGA membership at the annual Sosin Luncheon in 2017. Kay is always willing to support MGA by being one of the first to donate to fundraisers when requested. She has experienced many health challenges over and above her myasthenia gravis, however, she is always willing to assist MGA whenever possible. Both are very deserving of the award for their continued support of the Myasthenia Gravis Association.
Congratulations to our 2019 award winners!
You can request a copy of the DVD from the MGA Office by calling 248-591-4419.
MGA HOLIDAY PARTY
Are you ready for the holidays? MGA knows how busy it is between Thanksgiving and Christmas, so we have scheduled our Holiday Party for Sunday, November 24, 2019 from 12 noon to 3:00pm, at The Venetian Club, 29310 John R, Madison Heights, MI, 48071 (between 12 Mile and 13 Mile).
This is a great way to spend time with your family and friends before all the busyness of the holidays begin. Bring your children and grandchildren to get their picture taken with Santa and Mrs. Claus, while enjoying a great lunch and creating lasting memories.
You should have received the Holiday Party flyer in the mail. Please register by filling out the bottom of the form and mailing it to the MGA office at 1000 John R, Suite 111, Troy, MI, 48083 before 11/15/2019. You may also call the MGA office at (248) 591-4419 and register over the telephone. Be sure to include the names and ages of the children that are attending so they are included in a special surprise from Santa.
We are looking forward to another great turnout and hope to see you there!!
Download the Flyer HERE.
MGA EDUCATIONAL PROGRAM –
Alexion Pharmaceuticals, Inc. – Live Webinar(s)
meet. listen. ask.
Join a live webinar about generalized Myasthenia Gravis (gMG)
• Listen to a physician speak about a treatment for adult patients with anti-AChR+ gMG
• Hear from a gMG patient or caregiver
• Ask questions & gather information to discuss with your doctor
Tuesday, October 22, 2019 at 6:30pm (ET) – James Winkley, MD
Wednesday, November 13, 2019 at 7:30pm (ET) – Anthony Geraci, MD
Register at alexiongMGevents.com or call 833-MGEVENT (833-643-8368). Instructions will be sent to you 2 days prior to the webinar.
Alexion Pharmaceuticals is extending its Education Program to hosting Live Webinars for gMG patients and their caregivers. You can listen to guest speakers and even communicate live from the comfort of your own home.
For more information, see the attached flyer or call the MGA office at (248) 591-4419. You can also refer to the MGA website at mgadetroit.com for additional information.
MGA EDUCATION SYMPOSIUM VIDEOS AVAILABLE
MGA has compiled a list of videos from our Education Symposiums from 1999 to 2017 which are available for you to borrow upon request. Available inventory can be found by clicking on the heading “Patient Information” above. The list contains the main speaker, topic of discussion (when available) and Media (VCR and/or DVD).
If you are interested in viewing any of these videos, please send an email to email@example.com or mail your request to MGA, 1000 John R, Suite 111, Troy, MI, 48083. If you have any questions, please feel free to contact the MGA office at 248-591-4419.
AMAZON SMILE & KROGER COMMUNITY REWARDS – HELP MGA!!
For those who are not aware, Amazon and Kroger each has a charitable giving program that gives back to your charity of choice (MGA) for each dollar spent. It does not cost you anything and you do NOT lose your Kroger plus card discounts by enrolling in this program. Since the loss of our United Way contribution, it is very important to MGA to receive contributions in as many ways as possible. These programs do not cost you anything, except the time it takes to Enroll and is very much appreciated by those suffering from Myasthenia Gravis who receive the benefit of your enrollment.
- Do you need information about MG and its treatment?
- Would you like to meet with others who are living with MG?
- Do you have questions and concerns about coping with MG?
If you have answered YES to any of the above questions, you may be interested in attending a New Patient Orientation Meeting or a Support Group Meeting. Please call us if you have any questions about these meetings. Office: 248-591-4419
NEW PATIENT ORIENTATION
An orientation meeting for patients and family is offered in the Troy office. Staff members and other patients can be available to answer your questions. Please call ahead to let us know if you are interested. Office: 248-591-4419
Click meeting location for more information.
Counseling available upon request at the MGA office.
Call for an appointment.
248-591-4419 or 800-227-1763
“Remember MGA in Your Will”